Sunday, January 10, 2010

first round

Interesting week - the first round with assorted doctors as I assess my options on this breast cancer thing.

Wednesday I had an appointment with a 'medical oncologist' - he was supposed to talk with me about chemo. I didn't like him before I even met him - not a good start. I was escorted to his very elegant office - one wall was covered with his various diplomas and certificates and awards and credentials. Maybe that works for some people, but it just irritates me.

My surgeon had sent me to him, loaded down with all the test results and x-rays and films. Without even making the pretense of reviewing them, he said we didn't have enough information to be discussing chemo options - that I needed to have more tests; another blood test (to look for cancer markers) and a PET scan, a full body scan.
Positron emission tomography (PET) is a scanning technique used in conjunction with small amounts of radiolabeled compounds to visualize anatomy. ( http://www.answers.com/topic/positron-emission-tomography )

I would have thought that was my surgeon's call, but what do I know.

I walked out of his office with a bad taste in my mouth - fixed it with chocolate!!

Thursday I visited a 'radiation oncologist'. This gal impressed me a lot and improved my outlook considerably. She was very informative, very reassuring and very kind. She had spoken with my surgeon, and with the clown from the previous day, and looked at my x-rays with me. She told me that, as a general rule, though each patient is of course unique, that a lumpectomy requires radiation, and that a radical mastectomy perhaps does not. If radiation is required, it would be every work day for 5 or 6 weeks.

I told her of my concerns about radiation, based on what I went thru with Daddy when he had melanoma metastasized into his lymph system. He had 2nd and 3rd degree burns on his chest and back. They were so bad that Mama, a nurse, couldn't bear to treat them.

She assured me that the technology has improved dramatically in the 18 years since Daddy suffered so. Plus the fact that melanoma is very difficult to treat with radiation, hence requiring considerably higher doses. If I had to have radiation, the usual side effects are fatigue and perhaps some discoloration of the skin where treated. There can be swelling in the arm where lymph nodes are removed, but not always - I would just need to remember not to have blood pressure taken on that side!! Not so scary!!

I walked out of that appointment with a much better attitude.

Friday was the MRI, looking for any bad guys the x-rays and ultrasound might have missed.
MRI, short for magnetic resonance imaging is the use of nuclear magnetic resonance to produce images of the molecules that make up a substance, especially the soft tissues of the human body. Magnetic resonance imaging is used in medicine to diagnose disorders of body structures that do not show up well on x-rays. That was not a pleasant experience.

For pictures of boobs, the patient, me, lays belly down on the table, with the breasts hanging, gravity controlled, down into appropriately spaced holes. Uncomfortable as hell! Especially for someone like me who hasn't lain on my belly for 35 years because of my busted up knees and ankle! Plus the requisite 'hold still' command, and 'breathe softly', for 25 minutes!!!
And as those who have experienced an MRI knows, the noises the bloody machine makes are enough to drive anyone mad!

Now it's a wait and see period again - I was scheduled to see the surgeon again on Monday, but the MRI results won't be available until Wednesday, so I changed the appointment to Thursday.

So I'm going to just try to ignore it all for the next few days and enjoy winter in sunny southern Arizona, while the rest of the nation shivers!

2 Comments:

At 11:19 PM , Anonymous Anonymous said...

Gayle:

Thanks for keeping everybody up to date on your progress. I am thinking positive thoughts for you. with lots of prayers headed your way tonight.

Have a peaceful night sweetie.

Lee

 
At 8:43 AM , Anonymous Anonymous said...

Gayle,

Your positive attitude and forever sense of humor are your best tools to beat this beast. As the doctors will tell you, medicine can do so much - but attitude carries the day and the cure.

So keep up your wonderful attitude and perservence and know that there are a whole lot of us praying and thinking positive thoughts right along with you.

Lots of love 'n aloha,

Wendy

 

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